Patients receiving palliative care and their experiences of encounters with healthcare professionals

Elina Haavisto; Sofia Eriksson; Tricia Cleland Silva; Jaana-Maija Koivisto; Katariina Kausamo; Anu  Soikkeli-Jalonen

doi:10.1177/00302228221077486

Patients receiving palliative care and their experiences of encounters with healthcare professionals

Elina Haavisto , Sofia Eriksson, Tricia Cleland Silva, Jaana-Maija Koivisto, Katariina Kausamo, Anu Soikkeli-Jalonen

Management and Organisation, Helsinki

Research output: Contribution to journal › Article › Scientific › peer-review

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Abstract

The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient’s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

Original language	English
Peer-reviewed scientific journal	OMEGA - Journal of Death and Dying
ISSN	0030-2228
DOIs	https://doi.org/10.1177/00302228221077486
Publication status	Published - 02.03.2022
MoE publication type	A1 Journal article - refereed

Keywords

314,1 Health care sciences
palliative care
end-of-life
encounter
hospital care
patient
cancer

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00302228221077486Final published version, 600 KBLicence: CC BY

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title = "Patients receiving palliative care and their experiences of encounters with healthcare professionals",

abstract = "The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient{\textquoteright}s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.",

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AU - Kausamo, Katariina

AU - Soikkeli-Jalonen, Anu

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Finnish Government research funding (Satakunta Hospital District) Publisher Copyright: © The Author(s) 2022.

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Patients receiving palliative care and their experiences of encounters with healthcare professionals

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Keywords

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